Are you planning to make an appointment with a Florida estate planning attorney and create your estate plan? Have you been putting it off because you have so little time? Having an estate plan is critical, however, it is even more critical if you have a loved one with Down syndrome. When you have a loved one with Down syndrome it can result in both mental and physical challenges for your loved one. You and your loved one need planning protections in place for whatever the future holds for your loved one with Down syndrome.
As the parent of a loved one with Down syndrome you have been both an advocate and caregiver for your loved one. As a parent, advocate and caregiver, you are in charge of many daily tasks including, but not limited to, the following:
• Personally caring for your loved one
• Being sure to protect and advocate for your loved one’s rights
• Making sure your loved one has access to education
• Securing government benefits
• Locating and regularly visiting doctors and specialists
• Organizing and managing prescription medications
• Keeping a stable home environment
• Assist your loved one in all interactions, including with family members and the outside world
• Always protecting your loved one from harm
• Staying aware so that your loved one is not taken advantage of
With so much responsibility for your loved one, the idea that there might come a time when you are no longer here to care for your loved one can be frightening. That is why planning ahead and putting protections in place for your loved one with Down syndrome is so important.
In fact, this is where we can begin the discussion on estate planning and being sure that your loved one is protected should there come a time when you are no longer here to care for him or her. With a comprehensive Florida estate plan you can choose who your successor is for your loved one’s person as well as have a plan in place for your loved one’s financial stability. By planning ahead with your Florida estate planning attorney, who is experienced in this area, you can work together to create a care team that can act in your place when you are no longer here.
By working with your Florida estate planning attorney you will create your estate plan for your loved one with Down syndrome. Your plan will probably include special needs planning because estate planning in this area can include:
• A special needs trust
• Making choices regarding future healthcare decision makers
• Planning for the financial security of your loved one
• Transition plans to ensure someone can access government benefits
As the parent of a loved one with Down syndrome your daily care and attention is knowledge that is invaluable to anyone coming after you. You should consider making a detailed list of instructions on just what it is you do. In fact, we know many loved ones of family members with Down syndrome have fought significant battles for years and they know both what to do and what not to do when it comes to caring for their loved one. With that said, it is important for you to provide instructions for future advocates so they are not at risk of not knowing what to do in specific situations.
Your estate planning attorney has the experience to talk to you about what it means to create a special needs trust for your loved one with Down syndrome. You want to share your concerns with your attorney as well as what your goals for the future are. Our office is here to help you navigate the legal issues related to seeking and covering the cost of memory care. We encourage you to contact us and schedule a meeting with our attorneys.
Have you and your loved one just received the news that your loved one has Parkinson’s disease? Are you learning that as Parkinson’s progresses, the inability of your loved one to walk, bathe, and dress increases, as does the risk of falling? Also, if Parkinson's prohibits your loved one from living in his or her home, you and your loved one are now faced with the difficult decision of having to move your loved one into a nursing home. With the decision to place a loved one in a nursing home, there is also the question of how to afford the exorbitant cost of the nursing home? How can you pay for a nursing home if your loved one has Parkinson’s?
Start by determining if your loved one has any benefits which could possibly cover the cost of a nursing home. These benefits could include a long-term care insurance policy, life insurance policies, which can be cashed out, or veteran’s benefits. If your loved one does have one or more of these benefits, gather all the supporting documents, which may include original insurance policies or proof of veteran’s benefits and make copies. By talking about and locating these benefits now, you have the required proof of coverage should your loved one’s mental capacity decline as Parkinson’s progresses.
Next, you should seriously consider meeting with a qualified Florida elder law attorney. An elder law attorney, experienced in the area of long-term care planning, can assist in the review of any benefits you believe may cover the cost of a nursing home. In addition to the benefits, meeting with an elder law attorney can be one of the most reliable ways of determining how to afford a nursing home, when the time comes. In the discussion of paying for a nursing home you and your loved one need to know that Medicare does not cover the cost of any long-term nursing home care, Medicaid does. However, eligibility for Medicaid is based upon your loved one’s assets and, again, a qualified elder law attorney may assist in the drafting of planning documents, such as a trust, which may make your loved one eligible for Medicaid. This type of planning is most effective if conducted early, because there are time limits on the transfer of assets, which may affect Medicaid eligibility.
We know that a diagnosis of Parkinson’s disease is stressful, and it typically comes with many other issues to navigate. By working with a qualified Florida elder law attorney early in the diagnosis, you and your loved one can develop the best strategy of helping to assure your loved one will be able to afford a nursing home when the time comes. Your loved one will then have the peace of mind that he or she will receive the care that he or she needs, and you and your loved one can focus on sharing quality time in the present and future.
Our office is here to help you navigate the legal issues related to seeking and covering the cost of memory care. We encourage you to contact us and schedule a meeting with our attorneys.
Do you have a loved one with a disability? Do you have a loved one recently diagnosed with multiple sclerosis? As you and your loved one know, it can often be a lengthy and stressful time to get a diagnosis of MS. As you, your family and your loved one work to accept the diagnosis, you may need to begin special-needs planning. We would like to discuss some special needs planning tips for you and your loved one.
• Early planning is essential. In many cases of multiple sclerosis, the brain loses the ability to send messages to certain parts of the body, which may impede a person’s ability to communicate. We realize this can be a frightening prospect to confront but it makes early planning necessary to prevent any issues of testamentary capacity from arising. In addition, if your loved one has minor children, one of the most important things to do may be to name a guardian for the children, in the event that your loved one becomes unable to take care of them.
• Your loved one should make medical wishes known. Your loved one should have health care documents in place, such as a living will and health care surrogate. The living will can set forth your loved one’s wishes regarding end of life medical care. A health care surrogate can designate a trusted loved one to make medical decisions on his or her behalf in the event of incapacitation. Most importantly, because of the high level of medical care associated with multiple sclerosis, it may be important to work with a Florida estate planning attorney experienced with multiple sclerosis, so these documents have sufficient detail in terms of MS treatment.
• Prepare for long-term care. The cost of care and assistance for a person with progressive multiple sclerosis can be quite high, especially as the disease advances. There is often in-home modification, in-home assistance, or placement in a residential facility needed. A special needs trust may be the best option for managing the finances of your loved one, while helping to assure eligibility for government assistance. If your loved one’s mental capacity decreases, the trustee will be able to manage the financial affairs of your loved one.
Although the diagnosis of multiple sclerosis, coupled with special-needs planning, can feel overwhelming, consider following these suggestions and working with an experienced Florida elder law attorney who understands capacity to help ease the process. Special needs planning is not the end of the road. Rather, the purpose is to ease some of the burden for you and your loved one, by assuring his or her needs are met. Most importantly, there may be good days and bad days with multiple sclerosis, so try not to let yourself or your loved one be controlled by the diagnosis. Make plans and memories and keep enjoying life.
Our office is here to help you navigate the legal issues related to seeking and covering the cost of memory care. We encourage you to contact us and schedule a meeting with our attorneys.
